28 WEEKS!!!!!

We've made it! 8 weeks ago after our 20 week ultrasound, our OB told us "let's just make it to 28 weeks. If we can get to 28 weeks, I'll be happy". Well, we've done it.

Our weekly checkup went really well again today. The doctor had an emergency so he stuck his head only in for a minute but looked at the essential stuff and said "Looks great. We'll see you next week" and he was off. The technician spent 20 minutes or so looking at the dopplers. The ladies were VERY uncooperative. I was actually entertained but the tech didn't seem to be so enthused. Alyssa and Katy were moving and dancing and giving him all kinds of fits. We theorized that it was the music we were listening to on the way to the hospital. I popped in a pop cd I burned for Lisa a long time ago. When it got to Will Smith "gettin jiggy with it", the girls started DANCING. I was driving with one hand and feeling Lisa's stomach with the other and boy were they moving around. It was pretty funny.

Alright, we thought it was time to update the belly shots. These were taken today after our appointment.



...and now for the latest on the nursery. Lisa's dad helped me put together a new closet. Here are a couple shots of the before, during, and after.

Snowboarding on Friday

Ben and Lisa R. took me snowboarding on Friday. The three times I've gone this year were all pretty crappy. It seemed like when I could go, it was warm and the snow was hard and icy. Finally, we had some fresh snow earlier in the week so Lisa B was cool enough to let me go out for a couple hours.

I had a blast. I should have worn one more layer but the snow was very nice...probably the nicest I've ever been on. Ben took this picture of me at the very bottom of the lift. The view of Anchorage and the Alaska Range was incredible. Mt. McKinley and Mt. Foraker were HUGE!! (not pictured)

Thanks Lisa R and Ben for taking me (and letting me steal your picture) and Lisa B for letting me go!! I love you babe!

whew....went well today

We were worried for no reason. Things went very good today.

The OB was very positive and assured us that those new aches and pains that Lisa's been having this week are "normal". After talking about it, she ruled out contractions and said it sounds more like the babies are just getting big. Her blood pressure is right in the middle of normal and the babies heart rate were both in the 140s....again, normal.

We moved down the hall to the perinatologist. Again, they had nothing but good news for us. The dopplers were all "perfect" and the fluids were acceptable. Dr. Isada came in and said it appears to be a 75/25 ratio but Katy (the donor) still has plenty of fluid in there with her.

The biggest revelation was that Katy has flipped over. She must have plenty of room if she can flip over. This would also explain why Lisa has felt different these last couple of days and has been feeling her stick out in ways she hasn't before. It was funny to see them both upside down, face to face, and almost fighting for room. Unfortunately, we didn't get any pictures. This was our first ultrasound that we didn't leave with at least one picture. There's always next week.

They also spent some time looking at the cervix. What may ultimately lead to a premature birth is the weakening of the cervix. We were told today that if it measures less than 3 cm, then there is some concern and they'll take a closer look. We didn't realize this but last week it was close to 3 cm. This week was measuring almost 4 cm so they felt much better about that.

It ended with Dr. Isada telling us to "continue doing what you're doing and we'll see you next week." I asked AGAIN if he had an idea of how early we may deliver and he said that he didn't see why we wouldn't make it past 30 weeks. We still got the impression that 30-32 weeks is his best guess.

For now, we bought another week. We'll be at that magical 28 week milestone next Wednesday...a HUGE milestone. Keep us in your prayers.

prayers please

We have two appointments today...one with the OB and one with the specialist.

The babies have been acting different this week. Hopefully, it is nothing but we both kinda have a bad feeling. Katy doesn't move as much as she used to. She now just stretches and makes Lisa's belly stick way out on the right side. Lisa's having more pains then normal...but they could be Braxton Hicks contractions or just growing pains. Either way, she's been very uncomfortable these last couple of days. We will definitely have lots of questions for the doctors today.

Keep us in your prayers and I'll update late tonight.

...and by the way, today we have reached 27 weeks!!!

Iditarod 2007

The iditarod started on Saturday so we went down to check it out. Lisa went out too!!! Yeah, I know what you're thinking. "You took your 26 week and 3 day pregnant wife out in 15 degree weather while she should be on strict bedrest????!!!!" The simple answer is well, yeah. It is the Iditarod. Actually, we bundled up really well and were only outside for maybe 30 minutes. We took a lawn chair, that sank about a foot into the snow (imagine that), and Lisa spent the whole time sitting back waving at the Iditarodders. It was pretty fun.

Last year, we went downtown which was a litle more exciting but there are SO many people. On the way home, we saw where the trail went under one of the main drags and into a park. We pulled over and were able to wish the Iditarodders well with less people and fencing. This year, we went back to that spot where we could easily find a parking place across the street and have plenty of room to snap some good photos. Speaking of........



Lisa and I as the mushers go by for their 1100 mile journey to Nome

26 weeks, 1 day

We're inching our way to 28 weeks and beyond. Actually it seems to be going pretty fast. I can't believe it's been since Sunday that I've posted. It feels like that was yesterday. Lisa may have a different perspective.

The checkup on Tuesday went very good. Again, the perinatologist said that it appears the donor has less fluid and the recipient has more but it isn't anything to be concerned about. Actually, let me take this moment to share the names so I don't have to refer to them as donor/recipient.

The donor/smaller/feisty one is Kaitlyn Marie
The recipient/bigger/has a swimming pool to mover around in...is Alyssa Renee.

Kaitlyn is already being shortened to Katy. The name Katy, to me, is perfect for her personality so far. She's a fighter...she's the one that is ALWAYS moving and giving the ultrasound tech fits eventhough he keeps saying that she should be easier cause she has less room to move around in. Every time it happens, Lisa and I kinda laugh and look at each other and say..."that's SO Katy".

Lately, Alyssa has been making her presence felt too. She's been more and more active and sometimes when they're both going, we picture them having a dance-off in the middle of Lisa's belly. They just go back and forth. It's fun to watch and feel.

Anyway, back to the appointment. All of the dopplers looked good and the doctor again said that there was no reason for hospital bedrest or even to start coming in twice a week to keep a closer eye on them. The impression I'm under is that will be the next step. At some point, Katy's dopplers will show signs of distress so we'll start going in twice a week until it progresses enough that they want to monitor it daily or hourly at the hospital.

Their estimated weights were the most exciting to us. Last time we had a full ultrasound (which led to the first peri visit), they were 12 and 10 ounces. Just over a month later, Alyssa is 2 pounds and Katy is 1 pound, 12 ounces!!! NOT TOO SHABBY!!! My girls are bulking up nicely. It must be all those protein shakes.

I had them print out the summary so I'll scan that in so the people that check this with more experience can look through and add anything they'd like to.

So we bought ourselves another week. Our next checkup is on Wednesday. Lisa had her second steroid shot on Tuesday that helps develop the babies lungs in case they're born early. It is great to have that under our belt.

In other news, Lisa's dad is here!! He arrived Tuesday afternoon and will be here through Monday night helping us out. He's been great. He spends the days keeping Lisa company while I've been sleeping (night shifts). He has definitely taken some pressure off me by helping clean up, assisting with dinners, and walking the dog....which I'm not sure he's enjoying too much considering it's been in the single digits and now it's windy too. Yikes it's cold.

I'll leave you with this moose that's been hanging out in our yard lately. We think he's about a year old and a boy.

I also updated the nursery pics below.

nursery looking good (updated)

I finally finished the painting. It has definitely grown on us. We each stop every time we walk by the nursery and stick our head in. It looks better every day. It isn't nearly as bright as I thought it was and it will be even better once we get the furniture and wall stuff in there.




I'm standing by the window looking back at the closet. We're going to get new doors and put in of those cool closet organizers with shelves.

What'cha think? It really grew on us. We think it is going to be great.

It's okay if you don't like it. Our close friends went to Oregon State and their rivals are U of Oregon...the ducks...whose colors happen to be green and yellow. It wasn't their favorite choice of colors. I understand that. If they had painted their nursery burnt orange, I probably would have thrown up...literally.

Other news...we have come across some great stories and even more phenomenal people. Two quick stories....

We were at Toys R Us on Tuesday after our appointment looking at some of the stuff we registered for. We were looking at the big double stroller as another couple came around the corner and were looking at the same stroller. They asked if we had twins and we pointed to Lisa's belly. They told us that they just came from the hospital where their baby girls are in the NICU. They had complications (not TTTS) at 24 weeks and were flown from their home in Kodiak City to Anchorage to go on bed rest at Providence hospital. 3 weeks later, their 2 baby girls were delivered. We never found out their weights at birth but at 27 weeks, we imagine they must have been pretty tiny. 1 month later, the 2 of them (actually the 4 of them) are doing good and expect to be going home in another 3 or 4 weeks. We talked for 20 minutes and shared both of our stories. I've said this before but it has been very reassuring hearing similar stories and the similar emotions that others have gone through. It was so uplifting...and truely an amazing story.

On a side note...the guy was a Coast Guard rescue swimmer!! What a bad ass! He was telling us how when he found out they might lose their girls, he cried for 2 days straight. His wife kinda chuckled and said, "yeah, a rescue swimmer crying for 2 days straight?!" I nodded and let him know I went through a very similar time where I didn't know what else to do but cry. It was such a random but touching meeting. When we left, I turned and asked Lisa if that really just happened? It was if God just put these 2 angels in our lives minutes after we left our last appointment with the most sobering news we'd had in the last several weeks.

The other quick story is a couple that posted a message on the Week 25 update and also posted on the TTTS foundation forum. Many, many stories have touched our hearts but being able to read Kevin and Danielle's blog from diagnosis to present (2 healthy 5 month baby boys) was an incredible experience. I was moved to tears several times and am SO happy for you and your boys. You have touched us sincerely and echoed our sentiments. I pray that we will be as fortunate and brave as the two of you were through your ordeal. I've linked their blog at the top or you can click here and check it out.

While we put faith in God that everything will work out, it is without a doubt the most trying time I've ever gone through and know that it will only get more difficult until those babies are in my arms. Thank you for praying for us. We thank God every night when we lay down and pray together that we have so many wonderful people thinking of us.

One more thing. Our dear friend, Vanessa (blog here), got us connected with an organization called Twin Hope. It is a fantastic resource. She also got us bracelets to wear and Lisa a necklace with the Twin Hope logo on it. Very cool stuff. You can go here to check it out.

An organization that we turned to the minute we were diagnosed is the TTTS. The people over there have been fantastic and so supportive.

I just realized why I'm thanking everyone. I'm watching the OSCARS!!! It's put me in the mood to thank the people that have supported us. Pretty funny actually. I guess this is the time where the music would start playing and I begin yelling that I'm not done yet.

I'd also Like to THAnk my PARENTS. ThEY HAVE been GREAT THRougH tHIS WHOLE ThING!! WE LOVE YOU!!! THANK YOU!!!!!

Week 25

We had another good weekly appointment with the specialist today. I'd be lying if I didn't say it is still unnerving (if that's a word). We had a reality check twice...the first was with the tech who initially didn't see the pattern he wanted to see on the blood flow through the umbilical chord. He looked at it for what seemed like 5 minutes but was probably only a minute or two before finally saying..."ok, there it is". I'm not sure exactly why it was showing up that way but it was a moment of concern.

The doctor came in afterward and had the same problem. He initially didn't see the pattern he wanted to see but after a minute or so, he got what he wanted and was satisfied. I know I'm not explaining it very good.

The second moment was the second the doctor sat down next to Lisa and began looking at the ultrasound, he said "well, you definitely still have it" or something to that affect. It wasn't exactly what I wanted to hear but it is a good reality check that even though we aren't going to have the surgery, it is still a serious condition and will have to monitor closely.

I'd share the numbers they found but the tech again insisted they aren't relevant. Bottom line was the donor has room and there was still plenty of fluid in her bladder. I shouldn't say plenty because this ultrasound seemed more like that first one 3 weeks ago when it didn't seem like she was very restricted. The doctor was pleased and not concerned with anything he saw today so we've bought another week.

I asked about what he thought the time line is...if he thought we were heading down a path to a very premature birth. He seemed confident that we would make it through 30 weeks. We have been praying for and will continue to pray that we make it as long as possible.

Tomorrow is Lisa's diabetes test and the first of two shots to boost the babies lung development in the pretty likely case that they will be premature. Next Tuesday will be a long ultrasound (30-40 minutes per baby) and we'll get an estimate on their weights.

The nursery is painted but needs one more coat before I share any pics with you guys. It is certainly yellow. It's growing on us but boy is it yellow. I honestly don't know if I like it but I can't imagine painting all over. What a pain. It better grow on me fast.

Here's a couple pics from today's ultrasound. The first one you can see some one's butt right up against the other's head. A second after he printed this out, she pushed the butt away. It was pretty cute. The second one is right after that with her hand still up by her head ready to punch anything that gets close again.

it's after midnight.....

and I'm still up....and I have to work tomorrow. Uggghh! What a long day. I didn't start painting the final two walls until 9pm so I only got the first coat on. Pictures will have to wait until tomorrow night when I'm all done. Tonight it was; walk the dog, fix dinner, eat dinner, tape the bedroom, paint paint paint, dishes, and here I am. Some VERY NICE PEOPLE brought Lisa and I dinners for the next couple of nights so that will help out a ton. Thank you!!

Tomorrow...errr today or whatever, is our weekly checkup with the specialist. It is significant because it's the last chance for the surgery. It is looking like that won't happen so we're not really concerned about it but it is a milestone. Now we just have to keep those babies in there as long as possible. I'll write more about that later tonight after the checkup.

I'm actually just posting this to share a funny picture. It's a long story so I'll just leave you this image. I made myself laugh for a solid 10 minutes when I put this together. It may only be funny to me and Lisa but I'd thought I'd share for the world to see.

nursery progress

I was lucky enough to have a 4 day weekend and made a lot of progress on the nursery. The office/nursery is a TINY room next to our bedroom that has evolved into a place where we throw crap when we have visitors...then shut the door. We would clean it out occasionally but haven't really touched it much since we found out we were pregnant knowing that we would have to move everything out of there. That day was today. I'm embarrassed to share this first photo because it looks SO bad but you have to see how much work I did this weekend.

I should mention that Lisa's mom organized a lot when she visited last month. She also cleaned out the closet. So the first task was to move everything downstairs and then take apart the desk.

The desk is a huge corner unit that came apart in 3 sections. I had warned a couple friends that I may need some help getting the desk downstairs but somehow managed to carry each piece down with minimal damage to myself, the desk, and the walls.

The room was empty by yesterday afternoon so we made a quick trip to Lowe's to pick out the paint. That's right, I said WE. Lisa took the trip too and managed pretty well. We decided on green and yellow to go with our pattern that we selected from Babies R Us.

Here is the empty room yesterday afternoon and the room right now after 10 hours of painting today.



Why 10 hours? Well I had to do a primer on the one big wall and on the window frame AND door frame before I could put on the final green coat. What a pain!! Who paints a door frame??

What's left? The green is done. All I have left are two walls to do the yellow. I am hoping to finish both tomorrow (Monday) night. I will of course post the pics when it's completed.

One more quick story. Early this morning Lisa woke up to go to the bathroom and as she always does, looked down to our backyard to see if there's a moose down there. Well this time there was. There was an adult all curled up in a ball sleeping in our backyard. Lisa woke me up to show me and then I quickly fell back asleep. When Lisa got back in bed, Madison jumped up on the bed (which she never does) and circled between me and Lisa until we gave her some room and she curled up right between our legs. It was all pretty cute.

Lisa snapped this picture before she got back into bed.

Tuesday evening update

We're at the end of another very long day...another good day. We had our weekly appointment with the perinatologist, actually the technician. It was only about 20 minutes long but long enough to get all the measurements and know that we didn't have to go to Seattle for the surgery. With each passing day, it looks less and less likely that we will need the surgery.

Although the technician said the numbers are "irrelevant", they were 9.12 and 5.61 centimeters. As a refresher, the donor was 2.3 -> 7.4 -> 5.6 cm. The recipient was 9.6 -> 9.1 -> 9.1 cm. He kind of stressed this last week that the maximum vertical pocket that's being measured was an indicator that the problem could be serious but was not the "tell all" that they are looking for. The majority of the visit was spent measuring the blood flow through the heart and in their brain. I tried to ask more specific questions about how that is looking or if there's a range we should be looking for or anything else and he said that is all looks good. They are looking at the shape of the return that he gets from measuring the flow and that will be compared to the previous week to look for trends.

The doctor didn't stick his head in like he did last time to reassure us that everything looked good but the technician said that he didn't see anything that would warrant any immediate response and that the doctor would call if needed after he takes a closer look at the results.

It's all good news. 2 weeks ago we left the room in tears because we were so scared. Last week we were in tears because we were so relieved and happy. Today we just left. We were, of course, happy to not be on a plane but after last week weren't really expecting any dramatic changes. This felt like a check-up and not a diagnosis for the first time in a while...which is good.

Both babies were active. Lisa had a few moments this week where she had not felt them kick in a while and became concerned...concerned enough to tell me and then have me come over and feel her stomach until I felt them both move. So it was a relief to see that they are moving in there NON STOP!! It was good for Lisa to watch them kick and swirl and stretch and still not feel a thing. We got some more pictures but ran out of time this evening and didn't scan them in.

For those of you who have asked, we have registered. We registered with Babies R Us. Be careful though, we found another couple with the same names registered in another state.

We've had a lot of input from our friends who had the twins last year. We are also receiving some hand-me-downs from those twins since they are now a year old and outgrowing some things so we didn't register for some things like a bath tub or bottles.

Nursery update....there is none. :( The goal is to have it emptied out and painted by Sunday!! I've taken the before pictures so now all I have to do is....well everything.

And the names. Sorry just another teaser. We are still debating the spelling. I thought we were in agreement but apparently there is more than one way to spell Chrysanthemum and Aloevera....that's weird.

Keep the prayers coming and thank you for checking in on us and thinking of us.

23 weeks and 1 day

I don't know if anyone caught it but there was a show on the Discovery Health Channel the other night about twin-to-twin transfusion syndrome. I was at work but Lisa saw it while channel surfing. She recorded it for me to watch because she wasn't sure if she wanted to watch it alone. That ended up being an good idea. I watched when I got home from work yesterday and it left me a little speechless.

It followed 4 families as they went through the diagnosis to delivery. Of the 4 families, I think 3 of them ended up having the surgery. One twin did not survive out of the 4 families and it was one that had the surgery. The one family that didn't qualify for the surgery made it to 33 weeks and delivered 2 healthy girls with no problem.

I took several things away from the show. One is that the emotions that we are having are normal. It was reassuring to see the strangers going the exact same challenges we're facing and vocalizing our exact thoughts. It also showed me that we may really not be able to relax the rest of the pregnancy. I had hoped somehow things would continue to improve and we could just sail through 37 weeks or so...not gonna happen. Every couple stressed until the minute they were born. That means we could have 2+ months of worrying ahead of us.

Yesterday was a good example of that, though. Lisa kept saying during the day that she didn't feel right. The babies were constantly moving around and nothing seemed abnormal but she couldn't get comfortable and couldn't get it out of her head that something might be wrong. In the evening, she had what we think was another Braxton Hicks contraction. This was one a little stronger and more uncomfortable for her. It was only one though and she settled down after that.

During the show I was also able to see exactly how the surgery is performed. Again, I don't know if that's what Lisa would want to see. It might be enough for her to know how it's done without actually seeing it happen.

One more thing...I wanted to point out something that might be hard to visualize. This picture that I posted before is the donor baby. She has a name but you have to wait until the rest of the family knows. The donor is the one who is losing fluid in her sac. This picture was taken last week when the maximum vertical pocket of fluid was down to 2.3 cm.


Why I'm bringing it up is to show you how little room she really had. If you look on her face, you can see the membrane actually come off her forehead and then across her nose. You can see it again as it comes off her chin and goes down to her chest and then finally it comes off her belly on the right side of the picture. When there's that little fluid in there, it sucks up against her body and pins her down. On Tuesday when we looked, we didn't get to see the profile like this but the membrane was well off her and flapping around to the side every time she moved. That's why it was easy for us to see the difference right away and not have to wait for the technician to tell us there was improvement. It was obvious there was a lot more fluid in there with her.

I know there are some people that are checking the blog now that have more experience with TTTS so feel free to correct me if I'm wrong but that was how I understood it.

Again, thank you everybody for the emails, phone calls, and comments. We try to email everybody back but know we're missing some.

I am off for the rest of the weekend and plan on working on the nursery!!!! We also will be registering (finally) and pass on that info when we finish that up.

good news

The appointment went great today. It was mainly an appointment with the ultrasound technician with the doctor just dropping in for a few minutes to look over the results. The technician answered all of our questions and seemed very positive that we would not need the surgery today.

I immediately noticed a difference on the amount of fluid around the donor. It seemed better to me. Later when he looked for the maximum vertical pocket he showed us 7.38 cm!!!! It was 2.3 cm last week! The recipient is at 9.1 cm...she was at 9.6 cm last week.

We were ecstatic about those numbers but the technician warned us that although the numbers are great, that is only part of the equation. He is more concerned about the blood flow. He spent the majority of the time looking at the blood flow through the arteries in the heart and in the head. He said it will be the blood flow that will dictate whether surgery is required or not...and he and the doctor said it all looked good.

Bottom line, no surgery today and we'll look again next Tuesday. We were in tears we were so relieved but realize we have a long way to go. This was a big victory and hopefully a sign of things to come.

Keep the prayers coming. We know the real reason we've seen improvement. Thank you so much everyone. We love every one of you.

BIG day today

The appointment with our OBGyn went very well yesterday. She was very reassuring and optimistic about our situation which is exactly what we needed. I told her about the relatively pessimistic numbers I had come across regarding the surgery and she seemed to think that those were too low and had a much more optimistic idea of the success rate. Many of the questions we asked she deferred to the perinatologist but she was very patient and answered almost everything we threw at her.

One concern of hers is the possibility of delivering the babies early. The goal is to make it to 28 weeks (we're at 22 weeks, 6 days today). With our next appointment with her in two weeks, she is going to begin shots to help the babies lungs develop quicker so they'll be ready for an early exit if necessary. We'll find out more today of course but one concern is this window between the surgery and earliest delivery time. I believe the latest we can have the surgery is at 25 weeks but the earliest we can deliver is 28. So if the surgery happens it will be tomorrow or next week. With the surgery, it should buy us enough time to make it to 28 weeks...and beyond hopefully.

After our appointment, one of my concerns is regarding our babies "maximum vertical pocket" of amniotic fluid. What I've learned is that surgery will be more seriously considered once the MVP is over 10cm or under 2cm. I asked and as of last Wednesday they were at 9.6cm and 2.3cm. To me, that seems to indicate that surgery is inevitable. Certainly there is a chance that with bedrest these last couple of days, the levels could have remained the same or maybe improved but it really doesn't leave much room to maneuver.

With that news, we are preparing ourselves to head to Seattle today. I may have said Portland in a previous post but it's really Seattle. I'm working night shifts this week so the boss has put someone on call for tonight. Our neighbors said they would be happy to watch after Madison (our dog for those of you who don't know). So we'll be going to the hospital at 2pm and will probably know within the first couple of minutes of the appointment.

Now for the good news. The response that we continue to get from our family, friends, and strangers has been so uplifting. We are amazed every day at the response we get in emails and phone calls. Thank you so much! It is really helping. I actually printed out a lot of the emails yesterday and took them with us to the hospital so we could read through them again to remind us of all the people praying for us. We are NOT alone! Thank you!

One response I got yesterday was from a woman who under similar circumstances, had the surgery done in Seattle with great results. That was the most comforting news we've received throughout this process...someone who had the surgery in Seattle, made it to 34 weeks, and delivered two very healthy babies. It is very uplifting to hear that kind of story right now, I can't explain how much that helped. I think Lisa's response was, "THAT'S what I'm talking about!!!!"

I have also emailed Dr. Julian DeLia who is a pioneer with this procedure. From what I've read, he continues to be involved with MANY cases and would most likely be able to consult on our case. Unfortunately, we may be running out of time but hopefully I'll hear back from him today before we are forced with any decisions.

One more thing, I came across this article that is a very good summary of TTTS and what we're up against. article

I'm sorry this is kinda wordy but I wanted to update everything just in case we're in Seattle tonight and can't post.

I will certainly post, email, and call the minute we know what's going on. Please continue to pray for us today.

A & L & the girls

coping with the news

So as you may have been able to tell from the last post, we were pretty emotional about the news. During the pregnancy, it never crossed our mind (and why should it?) that there would be the potential that we could lose our babies. So we took that initial shock pretty hard but have been doing much better since the first 36 hours or so.

Lisa did better than me. I think the motherly instincts kicked in and she realized that worrying wasn't going to help the babies but resting and thinking positive would. She finished up work on Thursday and has spent Friday and yesterday glued to our favorite recliner in front of the tv.

I, on the other hand stayed home from work Thursday and spent the day pretty depressed. I slept most of the day and when I was awake, I just sat there and stared at the wall thinking. Not very productive considering we have a nursery to finish....err I mean, start.

Since Lisa got home Thursday evening and we were able to talk some more about our feelings, I discovered how well she was doing and her spirits lifted me up. She told me that although it was tough sharing what was going on and she cried a lot during the day, she also had some wonderful moments like when a principal of a school that had been tough on her all year sat down and prayed with Lisa in her office!!! WOW!

Then the phone started ringing...and ringing...and ringing. You guys have been the best! Just knowing that our family and friends are all over the place praying for us is SO uplifting. We really do feel better and know that is translating to the babies too.

So what's next? Tomorrow we go in for a routine appointment with the OB. I'm sure there will be lots of Q&A tomorrow but we probably won't learn anything new about the babies condition. On Tuesday, we will go to see the specialist who will take a look at the babies and see how the fluid is. I'm guessing there may not be much of a difference from last week. This will be just to make sure it isn't getting worse I think. If it is worse, we will be on the first plane to Portland, OR. The appointment is at 2pm and I'm sure we'll know within the first 10 minutes if we're going or not. I'll be sure to post the results as soon as we know them. It may be safe to say, if you don't see a new post by Wednesday then we could very well be in Portland having surgery.

The other news I want to share is the names of the babies. Since they are easily distinguishable now and we had pretty much secured which names we wanted, we went ahead and named them Wednesday night. I'll okay it with Lisa and probably tell the grandparents first but hopefully share that tidbit with the world in another day or two.

Keep us in your prayers.

In the mean time, here's Lisa at 21 weeks and what we were doing Friday night to entertain ourselves while Lisa's on bedrest. If you can't tell, Lisa's rocking on Guitar Hero. I believe she was playing Sweet Child O Mine.

visit with the specialist

Well......

I don't know where to start.........

We had our appointment with the specialist today to go over how our babies are doing. Ugggg I'm having a hard time putting this into words. It did not go terrible but the news certainly was not good.

Our babies have been diagnosed with TTTS (twin-to-twin transfusion syndrome). I'll copy an explanation from a website so I don't mess anything up.

"Twin-to-twin transfusion syndrome (TTTS) is the consequence of unbalanced blood flow from one twin (the donor) to the other (the recipient) across transplacental vascular communications and results in the polyhydramnios/ oligo- hydramnios sequence and can include growth discordance."

In other words, the blood flow from baby to baby is connected via the placenta. One baby is working harder and forcing the fluid to the other baby's amniotic sac. If untreated, the fluid is drained from the donor's sac and will die of dehydration. The recipient may also die because she can't cope with the extra blood flow so her heart will fail.

What can we do? Well not much right now. Lisa is going on bedrest. Our doctor said that although there are no studies that prove bedrest can reverse the effects, he believes that may play a significant role in balancing out the blood flow between the two babies.

If that doesn't work, there is a procedure that will help regulate the flow by "closing the blood vessels on the surface of the placenta so that the babies' blood is no longer shared." It's called fetoscopic laser ablation of chorioangiopus vessels or FLOC if you want to look it up. The hospital would fly us down to Portland, Oregon for the procedure. I read that is performed/available in only a handful of hospitals in the world. We will be going once a week so the doc can keep a close eye on donor's amniotic sac to see if we need to intervene.

Now....here's the downer and why I was having such a hard time writing this. Against my better judgement, I looked up TTTS and FLOC to see what I could find about the success rate. The specialist told us that the success rate is "very good". "Very good", I'm learning, is a relative term.

I found two case studies where severe TTTS were treated by FLOC. In both studies, both twins survived in 50 to 55% of the cases. One baby survived in 70%. That means that in 30% of the cases, neither baby survived.

I've been staring at those numbers for the past hour. I don't know what else to say.

We're having a hard time with this news. We were cautiously optimistic after the doctor's visit but now after finding some numbers to go along with the diagnosis, we are pretty devestated. We've both had a hard cry tonight.

...right now I can hear Lisa in bed reading a Dr. Seuss book to the babies and it's breaking my heart.

We need your prayers. We love these babies so much. 4 months ago, I couldn't imagine life with a baby....now I can't imagine my life without both of them.

Please pray for us.

Andy, Lisa, and our two angels

Baby news

We got the call we've been hoping we wouldn't receive. Our doctor called us to let us know there is a concern in the difference in the babies weights. They are an estimated 10 and 12 ounces which is 20% and enough to send us to a specialist. We have an appointment next Wednesday to see the twin specialist. Honestly, we don't know what to expect and are trying our best not to worry and have faith that things are and will continue to be perfect.

A bit of good news...Lisa felt one of the babies moving around today for the first time. On Sunday, she called me to tell me there is a lump in her stomach. I told her to push on it...so she says while she's gently pushing on her belly "baby? is that you?" Well the bump responded and simply disappeared.

Today was a different story. One of the little ones decided she was bored during a mid-morning meeting and thought it would be fun to stick a butt or leg out. I still don't know how Lisa kept from interrupting the meeting and telling everyone what just happened. The baby continued to move around for a couple minutes and then fell back asleep or wandered off to the other side of the playground.

Later this evening, Lisa felt another movement but by the time I came over and put my hand on the spot, it had stopped. So I'm going to go to bed now, say a prayer, and fall asleep with my hand on her belly...waiting patiently for that next kick.

Keep us in your prayers and we'll update as we find out more.

Here are some more pictures from our last visit.

This was the only one with both babies in the same picture. See all the fingers?

Jan 19th baby checkup

Sorry all you faithful readers, it's been a while....

Lisa had her last checkup on Friday and it was a good one. This is the appointment that most pregnant women look forward to because it's the first time they get to see their baby for 45 minutes while they do all their measurements. We are spoiled because twins require one of the apppointments every month so this is the third time we've seen the 3d pictures and we get 45 minutes PER BABY...but this was the "scheduled" 20 week checkup. We are so spoiled with these twins.

Lisa's mom was also in town so she was able to accompany us and see her grandbabies in action for the first time. They put on a great show. Both were very active to the point where we thought they were fighting. There was a lot of squirming, punching, kicking, and dancing. These are going to be fun babies.

The doc printed out 14 pictures for us.....14!!!!! Here are a few.

Neuschwanstein Castle

On December 30th, we took a road trip to see the most famous castle in Germany, Neuschwanstein. While we were flying back to Anchorage, Lisa and I talked about our favorite parts of the trip and we both agreed that day was #1 for both of us. For me, the castle was amazing but I most enjoyed driving through the countryside and seeing all the picturesque villages along the way. One of the highlights was when we stopped for lunch on the way back off the beaten path. I'm still not sure what the name of the village was but it was not a place many American tourist probably stop. Anyway, here are a few pictures from that day.

One of said picturesque villages enroute to the castle. This one was in Austria, I believe. We actually drove through Austria for about 30 minutes.


Carriage ride up to the castle.



...view of Schwan (Swan) Lake from inside the castle


Lisa outside of Neuschwanstein


Ludwig built his castle so he could keep a close eye on his Mommy and Daddy down the road who lived in this little castle.

Ski Jumping

Dec 31, 2006 qualifying jump in Garmisch, Germany.

Ski Jumping on New Year's Eve

Some pictures from our New Years festivities. The way I understand it is that Garmisch is 1 of 4 ski jump hills on a circuit in Europe. It is a huge anual event and one of the main reasons why we wanted to be in Garmisch during this time of year. We went on New Year's Eve for the practice and qualifying rounds. Finals were the next day and it RAINED...hard. We watched the finals live on tv in a lodge down the street and were amazed to see how many people braved the rain. Here are a couple of shots from that day and then that evening during the party....and a "Andy and Lisa's Adventures" first, a video from our digital camera.

We're HOME!!!

We finally made it home early Friday morning after 3 days of travelling. We left Garmisch on Tuesday and took the train to Munich. After an overnight stay at a nice hotel near the airport, we left around noon for a 9.5 hour flight to Philadelphia. We couldn't get a connecting flight out of Philly that same evening so we stayed overnight in Philly and left Thursday afternoon for the last 2 flights back to Anchorage. They were each 5 hours long and proved to be more exhausting the than the initial pond crosser. Luckily we were able to use miles to upgrade to first class on the last two legs but even so, we were both VERY anxious to get off the plane.

This first picture is the sunrise on our last day travelling from our hotel room in Philly. Obviously, our clocks were a little messed up so we were up a little early.

Before we got on the plane, we found an AWESOME Philly cheesesteak place down the street from the hotel. It was perfect. Here is Lisa washing down her cheesesteak with some water (I haven't seen her eat that much since we found out she was pregnant) with some of the decor in the background. The article on the wall behind her was about how President Bush and his entourage ordered 80 cheesesteaks a couple years ago while there were visiting the city. There was a signed picture on the wall from the crew of Air Force One.

Home...we knew it had snowed while we were gone but wow were we surprised to see just how much. Our next door neighbor kept our driveway shoveled but left the snow on top of the Bronco to show us how much it had snowed. I'm still in shock. The road back to our house is one lane because the snow is stacked up so high on each side. Our deck had more than 2 feet of snow stacked up so I got a little worried about the weight and shoveled some off. Madison ventured out into it but didn't like it too much.

Happy New Year from Deutschland

Lisa and I are still in Germany and having a blast. Our vacation is coming to an end and will be begin our long journey back to Anchorage tomorrow. I can't wait to share photos and stories with everyone. For now, I thought I would give a little teaser of some of our adventures.